(JuLY 2016)- There is “beautiful ray of sunshine” named Angelina who finally received her HERO’s lungs on July 13th, 2016. She had been fighting for her life on the tranplant waiting list at Texas Children’s Hospital for a record-breaking 21 months.
Angelina celebrated her 14th birthday on June 14th, and July 13th is her second Birthday- thanks to the wonderful donor and their family.
Suffering from Cystic Fibrosis all of her life, Angelina possesses the strength and willpower to live, regardless of the obstacles put forth before her. For many years, she enjoyed a sense of normalcy, doing the things all kids her age do, except more. To survive, the symptoms of the disease have to be treated daily. Even then, Cystic Fibrosis can progress with no obvious causes or triggers. It is a disease that takes the life from a person slowly and deliberately.
Angelina has been through multiple hospitalizations in the past four years- the longer for a period of 4 months last Fall. She has overcome infections of MRSA, Pseudomonas Aeriginosa, and Candida several times. Doctors have pumped the most powerful antibiotics and anti-fungals into her veins through IV and yet, the disease continued to progress.
Prior to July 13th, Angelina relied on oxygen support 24 hours a day. She has lost many personal liberties enjoyed by most of us, yet continues to have a positive and infectious outlook on life. As expected, she battles internally and requires an abundant amount of patience, understanding and caring showered upon her. At times she adjusts to her limitations as if they didn’t exist. She gets better adjusted, day by day.
Cystic Fibrosis is one of the leading causes of death in children. Many improvements in the treatment of Cystic Fibrosis have given rise to the life expectancy of many of those afflicted. However, Angelina has fallen into a category not seen often. The extent of her disease is such that her doctors say it is uncommon to have a child her age with this much lung damage from Cystic Fibrosis. To learn more about this disease that affects 30,000 Americans, visit online
It is our sincerest hope that you can contribute any amount in support of Angelina’s post transplant regiment. An sub-account for supplemental medical needs and support for Angelina during this process has been set up through the Arc of Texas Master-Pooled Trust. A temporary non-dividend account at UFCU has been set up to collect funds that will be deposited into the MPT.
Any help you can give is greatly appreciated.